Healthy Living

Sunday, December 6, 2009

Finding Fertility: PCOS, the most missed diagnosis

About one in three couples seeking fertility treatments are diagnosed with “unexplained infertility,” but this diagnosis, if you can call it that, is often given to women who have hormonal imbalances that weren’t picked up on the standard battery of tests fertility clinics offer.

One of the most common causes of “unexplained infertility” is polycystic ovarian syndrome or PCOS, which affects more than six million women in the United States and is the most common cause of missed periods. Although doctors tend to be aware of the more common symptoms—being overweight, and having excess hair and acne—many don’t realize that thin patients and others without these symptoms can have PCOS as well—especially those with mild PCOS, whose symptoms are still subtle.

If you have missed periods or there is any evidence that you’re not ovulating, request an evaluation for PCOS. This syndrome is characterized by high testosterone production (that’s what causes the acne and hair growth), irregular ovulation and multiple cysts on the ovary called polycystic ovaries. These small cysts are partially developed follicles that have stopped maturing because of the inhibitory effects of the high testosterone levels. To be diagnosed, you need to have two of the following three factors:

Excess testosterone. If you have acne or excess hair growth, then you do not need a blood test to confirm high testosterone. If you don’t have these symptoms, request the blood test for total and free testosterone. High insulin levels, caused by insulin resistance, are the most common reason women have high testosterone.

Anovulation. If you have infrequent, irregular periods or you menstruate without ovulating, it’s called anovulation. Use an at home ovulation prediction kit, like Clearblue Easy Fertility Monitor, for three to four months to monitor your ovulation.

Polycystic Ovaries. Cysts can only be detected with an ultrasound or other imaging test, but testing is not necessary to confirm PCOS if you have two other factors. If you’re already having an ultrasound for another reason, then your doctor should examine your ovaries. If your ovaries are larger than 10 cc or have more than 12 antral follicles early in your cycle, you have polycystic ovaries.

PCOS can range from mild to severe, and it goes without saying that the more severe it is, the more it can affect your fertility. But on the other hand, those with mild PCOS are more likely to be overlooked and diagnosed with unexplained infertility—and not treated for it.


For treatment recommendations, check out our book, Perfect Hormone Balance for Fertility or ask a question on my co-author Dr. Robert Greene's discussion board, haveababy.com .

Laurie Tarkan is the co-author of Perfect Hormone Balance for Fertility and Perfect Hormone Balance for Pregnancy. She writes for the New York Times and national magazines and is also the author of My Mother's Breast: Daughters Face Their Mothers' Cancer.

Check out Laurie's recent post on the Huffington Post.
Toxic Wombs
and infertility related articles:
Lowering Odds of Multiple Births
and
Are Men Overlooked at Fertility Centers

[photo credit: Getty Images]

Syndication:

From the Community…

Comments 1-3 of 3
  • Angela's Avatar
    Posted by Angela Tue Jul 29, 2008 4:16pm PDT

    There are many more symptoms to PCOS than what's listed here, including serious depression, difficult and painful PMS symptoms, the prescence of long, heavy, uncomfortable, unpredictable periods, and a multitude of health concerns involving the endocrine system that also effect fertility as well as overall health. Most OBGYNs, especially in the US, know little (and care little) about PCOS. Patients are better served by seeking help and information from endocronologists since PCOS effects much more than just the reproductive system, but all areas of the female body that create hormones. This disorder is sometimes referred to as a general, metabollic syndrome. Since this disorder is a syndrome, a woman can have the disorder with or without the presence of cysts on her ovaries IF she still has most of the symptoms.

    Many women who have this disorder become frustrated because they receive constantly conflicting information. Also, even though the disorder has been diagnosed for more than 70 years, little is known about it, many doctors still refuse to recognize it as a real disorder, and in the US, little research is being done into how to effectively treat it. More active research is being done in the UK and Australia, including studies that fund medical websites for PCOS because so few women are able to find health care professionals to accurately diagnose them.

    Report Abuse
  • jen's Avatar
    Posted by jen Wed Jul 30, 2008 1:49pm PDT

    Great article and additional info, Angela!

    So many women are affected by this disease and have no idea. We must research and be advocates for our own health and fertility. Too many Dr's just check off a list instead of treating each person individually.

    By doing my own research (communicating with my Dr and asking him run tests) we've ruled out many conditions for myself and my husband. As frustrating as it is, we truly are in the 'unexplained' category.

    Those of you looking for support with PCOS, here's a great site for you to visit.... www.soulcysters.com

    Report Abuse
  • Melody g's Avatar
    Posted by Melody g Tue Aug 12, 2008 7:19pm PDT

    I have not been diagnosed as of yet, but a co-worker of mine and I got into talks about problems she was having before she got pregnant. This struck up a deeper conversation about her physical ailments and she referred me to look up PCOS on WebMD, which I did. I literally have every symptom it lists. I had spent months in and out of my doctor's offices, had a detailed ultrasound, blood tests, and several other tests to find out that there was "nothing wrong with me" before I read this information. By coincidence, I made an appointment today with a different doctor because I refuse to believe that there is nothing wrong. I'm trying my best to lead as normal a life as possible (what with all that I've endured for the past year and a half symptom-wise), and would like to have kids in the future, but not at the ignorance and expense of my health. If anything, I'm hoping this new doctor will treat me with a little humanity and sympathy rather than as a nuissance.

    Don't give up on trying if you feel there is something wrong with you physically. Some doctors are better than others and actually care about what happens to you. If God put you on this earth, you are worth it!

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