Hi, my name is Rachel. I am 27 and live with severe Narcolepsy with Cataplexy, Fibromyalgia, and RA. Basically, I am almost always severely sleepy and in pain. Some may consider me weak, but I would beg to disagree. I would say that anyone living with a disability is exceptionally strong, patient, and loving. Here we are living our lives, and BAM... nothing is ever the same once debilitating disability strikes.
I am no longer able to drive or work a normal job. I am a strong Young Adults with Disabilites Advocate and Your Sleepy AVON Lady . Though Social Security decided I am permanently disabled, unable to work, I am not able to get Social Securtiy or any Goverment Assistance, because I am 2 work credits short of getting SSDI, and SSI benefits are based on Cost of Living Figures from the 1970's! We just lost our home to foreclosure, it broke my heart. We just moved into an Apt., and are already unable to pay the rent!
Basically, to live with disability, is a constant struggle of unimaginable fortitude. I try to help others living with disability cope with dailiy living and diagnosis. I love to help others the best I can, and if you have health insurance, you are so blessed. I have Aetna, and the copays still total more than $400 a month for all my doctor apts. and prescriptions! I take pride in reaching out and trying to educate others about living with disability and help those who are looking for answers. Check out my Myspace for more information and relevant videos, etc.
If you are living with strange symtoms, and/or your disability has intruded upon your life to the point of being unalbe to work or enjoy life, please reach out for help. Feel free to contact me for help anytime.
The road is long, hard, and brave, but we are never alone... we always have one another and our Lord watching over us.
When Disability Intrudes
- by , on Fri Apr 4, 2008 10:45pm PDT
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Posted by Sat Apr 5, 2008 12:39am PDT
Report AbuseHi Rachel, you are an extraordinarily strong person and I am glad that you are sharing your stories with us. I am sad to hear that things recently got even tougher for you. Hang in there, we are grateful for your spirit and generosity. Take care!
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Posted by Sat Apr 5, 2008 2:03pm PDT
Report AbuseThank you, sweetheart. All my online pals have been such an encouraging blessing. Thank you and may God Bless you, Rachel from Texas!
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