Parenting

Monday, November 30, 2009

20 month old Blind Child- Docs Running our lives......

So I am Christine, a 28 yr old mother of a son, Jacob who was born healthy or so I thought.  At 6 weeks old the doc's sent us for an MRI which I thought was because he was consuming too much formula.  ( to check the part of the brain that controls his bodies response to sugar signals, the putuitary gland)
They fasted him 4 hrs prior to the MRI, and drew bloodwork 2 hrs prior to the MRI.  As a new mother I was scared and nervous.  But we were at Childrens Hospital, which is supposed to be the best.  As we sat in the room where he was to be sedated for the MRI, his stomach started convulsing and his eyes were rolling back in his head.   I called the nurse and when she looked at him he had stopped.  She said he was fine he was crying at that point.  They ignored me and took him into the MRI for over an hour.  When he returned, we couldn't wake him for half an hour they waited.  So they called head doc on call and he requested a sugar test. My son's sugar was 8. (normal range is 80-120).  He was in diabetic shock.  An hour later i received a call from the doc who had requested the orig. bloodwork and she told me to feed my son immediately b/c the results from the bloodwork prior to the mri were 32. But it was too late. They admitted my son for 6 weeks.  Doing test after test on him.  When he awoke from testing his eyes wouldn't focus.  The docs told me he was born this way, it wasn't a result of anything they had done..... But he focused fine prior to there MRI and the siezure.  As a new mother I trusted them, and I was let down.  Over a year later I found out he is blind, completely and it may be due to the seizure he had there.  Now it is too late... I should've trusted my gut.  I should've pressed them when I felt something was wrong.

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  • Z's's Avatar
    Posted by Z's Sun Aug 9, 2009 7:34pm PDT

    Christine-- I am so sorry you are going through this. I don't know what to say. I know that even if I say it's not your fault, you will probably always blame yourself in the back of your mind. But, eventually, you need to forgive-- the doctors, yourself (even though you did nothing wrong), and be free from these negative feelings, so that you can be the wonderful mom that your little one needs.

    God bless you.

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