Avery’s Bucket List: Parents Blog for Baby Who is Living it Up Despite Incurable Disease

Avery Canahuati
Avery Canahuati

Over the last few days, averycan.blogspot.com, a blog "by" Avery Lynn Canahuati, a five-month old who was diagnosed with and incurable genetic disorder called spinal muscular atrophy (SMA) on April 6, has gone viral. She (through dad, Mike) responded to the tragic headlines with a typically plucky Facebook post, "Hey that's me! I'm an 'Internet Sensation'...only one thing, I'm not dying. I'm living!"


When Avery was first diagnosed, her doctors explained to Mike and mom, Laura, that she had only had about 18 months to live. The family also learned that SMA, while relatively unknown, is the number one genetic killer of children under the age of two in the United States. Part of their mission is to raise awareness about the disease.

"We had several days of sitting in shock and crying and then we pulled ourselves out of that," Laura told Good Morning America. "Since we had such a short time, we knew we wanted to make the best of it." They created a bucket list for Avery. Some of her upcoming plans include being a cheerleader, swimming with dolphins, and staying up past her bedtime watching TV with mommy and daddy. Here's what she's recently checked off her list.