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    User Post: Facing Family History

    October is breast cancer awareness month. Everywhere I go, I see pink and that's a good thing. I don't mind paying a little bit extra for things that offer a worthwhile contribution with purchase. Breast cancer is a weight I carry on my shoulders.

    My mother was diagnosed with breast cancer at 44 years old. That's 7 years older than I am now. Even though she survived, every day I think about it and wonder how much sand my hourglass has left.

    I could get tested for the BRCA gene, but I have my concerns. To be completely honest, I think about looking into it and then the idea gets lost in the chaos of daily life. However, I have read that people who test positive are thought to be 5 times as likely to get cancer.

    If I got tested and it came out positive, what would I do?

    I suppose the most logical thing would be to have a preventative mastectomy, oophorectomy and/or hysterectomy, depending on what my physician recommended. All of this is not without potential side effects and what have you.

    Then there's how my insurance might react. I shiver thinking about this.

    Even with my family history, I've had resistance when asking for an early mammogram. The last argument I heard was that mammograms are not very accurate for women under 40. I have my annual appointment in a month and intend to push for one yet again. I am religious about self exams, live a relatively healthy lifestyle (though I admit Diet Coke and wine can be vices) and take multivitamins. However, I would love to be checked from the inside out.

    So for now, I'll start there. But I will investigate getting tested for BRCA. Have you been tested for BRCA or are you thinking about it?

    *Katie Dillon writes La Jolla Mom, an award winning lifestyle site about spa, travel, parenting, homekeeping, food, wine on Wednesdays and local happenings. She lives in La Jolla with her husband and preschool aged daughter, and is a proud member of the Yahoo! Motherboard.

     

    4 comments

    • mommydearest  •  1 year 7 months ago
      I've had 3 different cancers. My mother died of Leukemia. My Grandma had breast and ovarian cancer (died of ovarian).

      You would think I carried the gene, right?

      Nope.

      You are at "risk" for family history, but the fact of the matter is, if you got it, it would be because you are a young woman that randomly gets that fluke experience of having breast cancer, even if "you are just so YOUNG."

      I was diagnosed with triple negative breast cancer once my tumor was 7-10 cm! Triple negative loves to prey upon young women like us, so I am grateful I am still here 5 years later.

      What's worse, living in fear, or finding something early and dealing with it so it is not out of control?!

      I agree that a mammogram and ultrasound aren't great. They found "something," but when I went to U of Chicago, they made me do a bilateral breast MRI which was SOOOOO painful, but saved my life.

      Original testing and pics showed a 2 cm surface tumor. MRI showed a tumor that explained why my left breast was pendulous (sp?), and hurt.

      Even if you decide to do something, I would say get CHECKED first, because I agree with you. If I turned the clock back and could do it all over, I wouldn't want to know I was likely to get cancer.

      If I knew that, I would live like I was dying. Now I live because I am not dying.
    • Lauren  •  1 year 7 months ago
      My mom, her mom and her mom (3 generation in a row) have had breast cancer. do we have the BRCA gene? Nope. Even if we did- what would it mean for me? nothing.... Because of the family history i will have to start mammograms very early and get them more often. if i had the BRCA gene- i'd have to do the same thing. Having the BRCA gene does not mean you will definitely get breast cancer, it increases your risk. something as dramatic as get a mastectomy, hysterectomy.. would would probably not be advised.. but im not a doctor.. but i do know that the recovery from a mastectomy is long, frustrating and definitely not easy. It's not something you would want to do unless absolutely needed.
    • YodelingMamas  •  1 year 7 months ago
      I can understand why this decision is weighing on you. I hope that you get some good insights from others who have been in your situation. But in the meantime, I think it's wonderful that you're doing self exams and having an important dialogue with your doctor. Thanks for making all of us take a step back and really think about breast cancer and its impact.
    • La Jolla Mom  •  1 year 7 months ago
      Thank you for your brilliant comments! It is certainly true that even if you don't have the gene, you're still "at risk".

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